Tuesday, June 23, 2009

The Second Tuesday

Today was "Decorate Your Room Day" at the hospital. Not really for the hospital, but just for us.
Jenn, Seven's feeding therapist and close personal friend, brought craft supplies by and demanded we decorate. I can't do half a job on anything (except cleaning) so we went all out.
I really wanted to hang a disco ball, but don't have one. I had to settle on Seven's metallic pom-pom, his favorite toy. We hung photos of Seven and some family photos all over the room. Seven definitely has the coolest room in the pod.
Ocean visited again. Jarrad picked her up so we were able to have several hours of alone time with her. The Child Life Counselor here visited also. She brought Ocean a little care package with a coloring book, crayons, bubbles, and a finger puppet.The counselor asked Ocean about why Seven was here. She answered questions appropriately, and we were assured she has a good understanding of Seven's hospital stay. Seven spent yesterday resting. Today we wanted to start working toward weaning off the ventilator. Our strategy is to "sprint" him. This involves taking the ventilator down at intervals during the day. When the ventilator works less, Seven has to work more. We let him rest, then sprint him again. It's a lot like training for a marathon. Seven is "out of shape" and needs to build up more of the muscle tone required for breathing on his own. Our goal is to try and extubate Thursday morning, but this is really dependent on how Seven reacts.
Seven's platelet count jumped up big time today. It looks like he doesn't need my platelets after all and they will hopefully be used to help someone else.
Big News!! Seven opened his eyes on his own for the first time in a week! Sorry, I didn't get a photo. I was too excited to think. I spoke loud words of encouragement. He looked really annoyed!

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